Lancement du Festival Eop !, projection de « Nobody’s Perfect »

Publié par , le 3 décembre 2011

Ce vendredi 2 décembre, c’était la soirée d’ouverture du festival Eop ! à la maison de la culture de Namur. Le festival consacré aux handicaps et aux personnes concernées par une invalidité fêtait le lancement de sa première édition. Dans de telles circonstances, l’ambiance est souvent électrique et la tension palpable, mais ici, malgré une petite excitation normale, l’ambiance était chaleureuse voire même familiale. Il faut dire que le thème du film d’ouverture, les dégâts du Softenon, prêtait plutôt au respect et au calme qu’à l’hystérie.

Nobody’s Perfect était donc le premier film à être diffusé au festival Eop ! Soirée de gala oblige, de nombreuses personnalités du monde politique mais surtout, du monde associatif étaient présentes pour casser la bouteille sur la coque d’un navire qui fera, espérons-le, un long voyage.

Le long-métrage allemand de Niko von Glasow traite du handicap subit par ce que l’on a appelé «la génération Softenon». Pour rappel, le thalidomide était un médicament sédatif et anti-nauséeux que l’on prescrivait, notamment, aux femmes enceintes afin qu’elles vivent mieux les désagréments de leurs grossesses. Mais les molécules présentes dans celui-ci provoquaient des difformités conséquentes à la naissance. Atrophies des bras et des jambes, malformations faciales, … Un vrai scandale.

Dans ce documentaire, Niko von Glasow a voulu montrer au monde ces victimes et a voulu dénoncer le regard du monde sur le handicap physique en réalisant une série de clichés les montrant dans le plus simple appareil. Filmé de manière semi-amateur, le film rapproche Niko de Michael Moore, toute histoire gardée. Effectivement, le combat n’est pas le même mais une similarité peut se faire dans la manière de réaliser le documentaire. En effet, les deux sont engagés dans leurs propos mais gardent une certaine crédulité ironique dans leurs questions obligeant le protagoniste à réagir à des discours parfois forts.

Nous avons été touchés par la vie de ces personnes marginalisées malgré elles. Celles-ci ont une véritable force mentale et une philosophie de la vie tout à fait remarquable et respectable. Vivre avec une invalidité aussi lourde impose un rythme de vie et une organisation draconienne. Cependant, la société ferme les yeux sur ces personnes «Extra-Ordinary» et c’est cette absence d’intérêt ou ce regard tronqué qui leur sont préjudiciables. Car, au-delà du rejet déjà lourd à assumer, c’est une indifférence générale de la société qui s’est forgée dans les esprits.

Cela fait maintenant cinquante années que le thalidomide a fait ses ravages. Jusqu’à présent, aucune compensation n’a été versée aux victimes par les sociétés et les états responsables de cette hécatombe. Que ce soit la société pharmaceutique Grunenthal ou les états concernés, les plaintes déposées en justice n’ont toujours pas donné gain de cause aux plaignants. Il y a deux semaines encore, vingt-trois victimes de ce produit ont été déboutées au tribunal civil de Bruxelles. Elles assignaient l’Etat belge pour commercialisation d’un médicament qu’elle savait néfaste. Celles-ci ont fait appel et espérons que ce film et ce festival pourront faire avancer les choses en leur faveur.

Matthieu Matthys

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